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What is Fragile X?
Fragile X Syndrome is the most common known cause of inherited learning
disability (mental handicap). It occurs in boys and girls and is associated with
varying degrees of learning difficulty.
As it is a genetically inherited condition, when one child in a family is
diagnosed with fragile X, there are enormous implications for the parents,
brothers and sisters of that child and indeed for many other relatives. Both men
and women can be carriers of the syndrome and it occurs in all populations and
ethnic groups.
In some families, fragile X has been the cause of learning difficulties in
relatives through several generations, while in others it can cause problems in
only one person.
About the Fragile X Society
The Fragile X Society was formed in 1990 by families whose children have Fragile
X Syndrome.
Discovering that your child has fragile X can be a devastating experience. We
want families to have the opportunity of support from others who know the
problems, and to have access to full information about the syndrome, including
the latest medical, psychological and educational research findings. With a
fuller understanding of the condition, parents can be far more constructive and
effective in helping their children to reach their full potential.
The Society’s Aims are to:
• Provide support, information and friendship to fragile X families from those
who share and understand their concerns and needs
• Educate and inform the public and professionals about fragile X in order to
raise awareness and understanding of the syndrome and so improve the care of all
people affected by fragile X
• Encourage research into all aspects of fragile X and publicise the results
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